Deep in the Heart of Your Brain: Notes From an Exhibition

Deep in the Heart of Your Brain speaks of lived experiences of myotonic dystrophy through interviews, fiction and a commissioned essay. Illustrated with beautiful images from artist Jacqueline Donachie’s exhibition of the same name at GoMA (2016), this publication is centred around a key work from that show, Hazel, a compelling film that directly connects the experiences of the participants – all sister sets, where one sibling has inherited the myotonic dystrophy gene and one has not – to a wider discussion around relationships, age and appearance.

This publication provides an excellent resource for scientists, families living with myotonic dystrophy, artists and museums to begin to understand the social and emotional complexities around disability, care, relationships and ageing.

• Author:  Jacqueline Donachie with contributions from Moira Jeffrey and Nicola White
• Paperback publication, 250 pages
• Published by Glasgow Museums Publishing, 2017
• ISBN 978-1-908638-27-4